Lists

Websites we use

A list of web sites we use to inform us about the issues joe has to deal with

Name	Web address	Description

kaiserchiefs	http://www.kaiserchiefs.co.uk	Joes happy music for hard and good times

SKY news Joes story	http://news.sky.com/skynews/article/0,,30100-1254299,00.html	Super bug story picked up by SKY

Holiday at a Park where Joe lives	www.hendra-holidays.com	We have had already been visited by 4 angelman children

THE CARE AND FEEDING OF AN ANGEL	http://bigjer53.com/michellemallory/	by Carol Mallory mother of an Angel

Pseudomonas aeruginosa Joe has had this bug four times	http://textbookofbacteriology.net/pseudomonas.html	Research information

Invasive Enterobacter sakazakii Disease in Infants	http://www.cdc.gov/ncidod/EID/vol12no08/05-1509.htm	Information on one of Joes rarer super bugs

Facts about angelmans syndrome	http://www.asclepius.com/angel/asfinfo.html	Information for research or artical writing

Artical on fund raising for Joe	http://www.newquayvoice.co.uk/nvnews/news/newsItem.php?news_id=2345&offset=	Newquay voice

Daily Mail story about Joe	http://www.dailymail.co.uk/pages/live/articles/health/womenfamily.html?in_article_id=440104&in_page_id=1799&in_page_id=1799&expand=true#StartComments	Boy, 3, who fought off ten superbugs By IAN DRURY

The SUN artical	http://www.thesun.co.uk/article/0,,2007110107,00.html	Not why we did this artical but it does have info on SB

South west news joes story	http://www.swns.com/photoshoot.php?ID=186	Joes information for the media

Where to stay when your child has a long stay in hospital	http://www.rmhc.org.uk	"The need for the services RMHC provides is enormous. When a child is admitted to hospital the family can find the time pressures and cost of travelling to and from the hospital, puts a huge strain on family relationships. RMHC helps to support families t

Fact list of for Angelmans syndrome	http://www.asclepius.com/angel/asfinfo.html	A.S is often hard to spot

special needs pushchairs	http://www.specialneedspushchairs.co.uk	where we got Joes buggy from

Sensory Company	http://www.thesensorycompany.co.uk	Where we got Joes projector from

ASSERT	http://www.angelmanuk.org	Support and information group

Stevens Johnson Syndrome Foundation	http://www.sjsupport.org	The Stevens Johnson Syndrome Foundation

Angelman Syndrome Foundation USA	http://www.angelman.org	The Angelman Syndrome Foundation

The "Ashley Treatment"	http://ashleytreatment.spaces.live.com/	The story of a brave girl whose parents have sparked a debate which could be very relevent to our choices in the future.